A petition
is being circulated to demand that GAO conduct a
full investigation that will address scientific bias
and that will also cover NIH. -- 10 Jun 1999
BACKGROUND
In an extraordinary turn of
events, a noted CDC scientist has publicly
charged his own government agency with improperly
diverting funds away from authorized CFS research.
Since those charges were leveled, the HHS
Office of Inspector-General
has confirmed them with its own audit, and now
Congress's General
Accounting
Office is launching its
own separate investigation.
The Director of the CDC has proposed major
reforms to preclude such errors from happenning
again. The scandal has recently been the subject of
Congressional hearings (Feb. 2000).
Dr. William Reeves, the Center
for Disease Control's pointman on CFS research,
filed a complaint with the U.S. Health and Human
Services Inspector-General
in July 1998 to demand an
investigation of the diverted funds. CDC
administrators then canceled a scheduled study of
CFS in youths. Dr. Reeves claimed in a
written statement that he was told by another
CDC official that when there were fiscal
shortfalls in other programs, CDC
administrator Dr. Brian Mahy "always made up such
deficits with CFS and other similar monies". Reeves
detailed that in recent years as many as half or
more of the millions of dollars specifically
earmarked for CFS research had been secretly
diverted to other programs. Reeves claims that the
CDC's reports to Congress about these
expenditures were in fact false statements. Reeves
has filed for protection under the "Whistlerblower's
Act", a law that protects the jobs of government
employees while they report government waste, fraud
or abuse.
In an
Associated Press newswire story about these
events, patient leader John Friedlich was quoted as
saying that said the predominant attitude among
CDC scientists for years has been that CFS "is
not important, is not a real illness and they're not
going to commit to try to learn more about it."
These events were also reported on the front page of
the
Congressional Quarterly Daily Monitor (Sept. 9,
1998), an influential publication read by
lawmakers in Washington, DC, and in later stories by
the
Associated Press (July 1999) and the Washington
Post (
May 1999 and
July 1999).
The HHS Inspector-General
released
a report in May 1999 which confirmed the charges
of diversion of funds. Under pressure from the CFS
community, the General
Accounting
Office (GAO,
Congress's investigative agency) has announced that
it is launching its own
investigation of the CDC, which will
additionally review CFS issues at the National
Institutes of Health (NIH). The
GAO
investigation was
promped by a
request from Senator Harry Reid.
Patient groups are circulating
a petition
and are
asking Congress to focus on this issue. The
Director of the CDC has issued
a statement which offers an apology and outlines
a plan to oversee future expenditures of CFS
research at CDC, but which does not comment
on the charges of scientific bias being leveled by
the CFS community.
The Director of the CDC
Jeffrey Koplan held a meeting with CFS advocates on
Oct. 13, 1999 to find out what can be done to make
amends. Dr. Koplan avoided answering questions about
scientific bias and how the diversion of funds came
about in the first place. Instead he stated that he
would take personal charge of major reforms that
would address as many concerns as possible. Most of
the CFS leaders who attended the meeting said
afterwards that despite whatever promises may have
been made by the CDC, they would be looking
for results.
In February 2000, news reports
indicated that CDC funds from another
research area (hantavirus) had also been diverted,
and by the same person who had diverted the CFS
funds (Dr. Brian Mahy). A Congressional Commerce
subcommittee declared that it would be launching its
own investigation of
these matters. The U.S. Secretary fo Health and
Human Services, Donna Shalala, announced that she
would be ordering her own reforms.
At a hearing before the House
Appropriations Committee (Feb. 10), CDC
Director Koplan announced that there would be an
additional outside audit of the CDC's
accounts, and that Dr. Brian Mahy had been
re-assigned away from the CDC division he had
been running. The Congressmen expressed faith in the
integrity of the CDC Director and his agency,
but wanted to know that the problems would be
resolved. The CDC Director had a much more
difficult time before a Senate hearing on Feb. 29.
Senators interrogated Dr. Koplan and apparently did
not accept his explanations.
The
GAO released its own report in June 2000 which
confirmed the Inspector-General's
report, and which also noted a steady decline in CFS
research since 1996.
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